random thoughts and inner words...



This blog is my creation. It is my own words and a lot of words from music that has influenced my feelings and actions. Music has the ability to make you happy or make you cry; sob or be racked with tears. Take time to listen to the world around you and the music that comes from it. Not all music is heard; some is read from the pages of books. It's up to you to hear the notes... Thank you for reading...







Wednesday, June 30, 2010

Crossing that Bridge With the Lessons of Love...







Fearless people,
careless needle.
Harsh words spoken,
and lives are broken.

Forceful ageing,
help me I'm fading.
Heaven's waiting,
It's time to move on.

Crossing that bridge,
with lessons I've learned.
Playing with fire,
and not getting burned.
I may not know what you're going through.
but time is the space,
Between me and you.
life carries on... it goes on.

Just say die,
and that would be pessimistic.
In your mind,
we can walk across the water.

Please don't cry,
It's just a prayer for the dying.
I just don't know what's got into me.





Been crossin' that bridge,
with lessons I've learned.
Playing with fire,
and not getting burned.
I may not know what you're going through,
but time is the space,
between me and you.
There is a light through that window,
hold on say yes, while people say no.

Life carries on,
Ohh!
It goes on....oh-ee-oh, whoa-ee-oh ho oh...

I'm crossing that bridge,
with lessons I've learned....
I'm playing with fire,
and not getting burned....
I may not know what you're going through.
but time is the space,
between me and you.
There is a light through that window,
hold on say yes, while people say no





'Cause life carries on....oh-ee-oh, whoa-ee-oh ho on...
It goes on....oh-ee-on,
It goes on.
Whoah.
Whoah.
Life carries on.

When nothing else matters.
When nothing else matters.
I just don't know what's got into me.
It's just a prayer for the dying.
For the dying.

From the great singer Seal, "A Prayer for the Dying". And NO, I'm not dying. I'm not really doing worth a fuck, but I don't think I'm dying, at least I'm reasonably sure!

But first here, you nust realize how hard it is to type and text. It is next to impossible. Yeah, you see nice clear sleek type here, but it is all the work of a stumble fuck! Believe me. So I'm done with typing. Read the lyrics. They'll touch your soul...

Jester

Annie-Mae, I hope you're doing great! Goodnight Mrs. Calabash, whereva you are! And maybe I'll try some more of this tomorrow!  Thank you to every prayer giver and well wisher!


Monday, June 21, 2010

This Ain't No Party; This Ain't No Disco; There Ain't No Fooling around!


Hello, gentle reader. Well, the best is yet to come. I'm taking an oral chemotherapy drug, now. It's called Imuran. Presently, it is busy as a bee, annihilating those bad little antibodies that are blocking my "receptors". Then comes Thursday and Friday of which I am steadily growing more and more terrified of. "Why?" you ask? Wellll, why didn't you say so? That's a horse of a different color."


I'm going for a procedure called IVIG. It stands for intravenous immunoglobulin. You sit in a comfortable chair and they stick a needle in your arm and then INFUSE alot of this stuff. It's supposed to be governed by body weight. 1 GR/1 KG of body weight. Since I have bucked up to 195 lbs, i'll be getting roughly (2 x)90 grams of this stuff. Two days of it, and it takes seven to eight hours to do. And while it doesn't seem to fall in the chemo category, it might as well. Some of the reading I've done suggest those kind of after-effects. So theres what I have to look forward to. Fever, chills, vomiting, diarrhea... The Four Horsemen of the Jesters Apocalypse. But there IS a chance I won't have them. "I will pick not, George." "Ahhhhhh, Shaddup!"




The above URL'S are very informative sites on Myasthenia Gravis. 

The mechanics of Myasthenia Gravis...

So here I go...  Hats off to The Chairman of the Board!

Saturday, June 19, 2010

"Western Union - Dah-dat-da-da-da Dah-dat-da-da-da"

SO, new doctor yesterday. If all doctors had the attitude and personality of this doctor, no one would ever leave a phsyicians office feel like they's been beaten with a salami. I guess that my last post got to the Big Guy and he gave me a little break. I know that I got a certain twisted satisfaction from calling and cancelling my appointment with Dr. (Up in his) Hightower. So here is some celebration music. Steve Allen shuts up at about a minute in if you want to go straight to the tune...



Thanks, Dr. Fischer, for making me feel like a person again... I'm going to add to this. Later...

Monday, June 14, 2010

We're a Nation of Billions and Can't Cure Disease... or plug oil wells, for that matter.

"You know you make me crazy,
 What you do to me,
 It's a chemical reaction or an allergy.
 You know you make me crazy,
 You're aware of that.
 Why don't you come and put me away?"

Born in the year 1956, I suffered from none of the maladies that kids and parents had to worry about. Polio, anti-biotic teeth destruction and more. Hell, I didn't even get the Chicken Pox. I was a little monster, though. Always getting in trouble for something or another. And I always got my ass tanned. And most of them were repeat offenses. Taking off for hours at a time without letting my folks know; Smoking cigarettes; swiping change, especially taking the valuable silver dollars that I had no idea were as valuable as they really were. I was happy because I could get the entire HUGE box of "Ugly Stickers" stickers and gum for the incredible amount of five bucks! Yeah, I was a little shit. My ass was intimate friends with yardsticks, fly swatters, leather belts and crystal plastic hair brushes. And let's not forget Maw-Maw's bedroom slippers - pick a foot, that would slap you faster than a light sabre from Star Wars.

So what does that have to do with what's going on? I guess I'm saying that payback is a mutha'! Here I am, everything going along really well. GFPB holding it's own; Doing some writing and feeling ok. Johnny and Allison get married in a wonderful ceremony. We got Karen a really nice car. In the meantime, this insidious disease called Myesthenia Gravis is creeping up my back. It hits me in the eyes first - from double double vision vision to droopy eyelid that makes me look like Jo-Jo the Gimp. People look at me like I'm a clinical tard and they look fucking scared. Jesus, it's only a goddamn eye! But not to me. It is everything. So I wear my patch and contact lenses. I wear reading glasses because the contacts reading section is too weak. It will fix.

But lets not forget the rest of it. Before I leave my eyes... Yesterday I noticed a big, red floater in my right eye. Normally black, this thing looks like blood in my eye field. Yippe-kiyay Muddafucka!

Before the paintball game three weeks ago, I was confined to ocular symptoms. Now the physical crap is starting to cook. Weakness; extreme sensitivity to heat; stomach a-go-go from the meds that aren't working. Extremely tired, but unable to sleep. Sore jaw muscles and joints. Sore throat ALL the time and a challenge to beat the band when it comes time to swallowing. Leg cramps and midnight dances to get rid of the spasms. It's a veritable cornucopia of fun in the sun.

I'm pissed. I hate this shit. It's karma. I know. But it's not so instant... It's taking over slowly. My attitude is in the toilet. I feel like shit ALL THE TIME! Weight gain - 10 lbs in three weeks. My big question is, "Since you're taking meds that give you the shits all the time, how in Jehosephat's garter belt can you GAIN weight?" Another amusing trick from the guy upstairs. Thanks! Hope you enjoyed your laugh! You can fucking quit it now!